JOIN the National Registry of Veterans

 with Amyotrophic Lateral Sclerosis (ALS)

What is the Veterans ALS Registry?

The ALS Registry is a nationwide record of living veterans who have ALS. By identifying and following the health status of veterans with ALS, the registry helps researchers understand patterns of ALS among veterans and provides valuable data for studies examining the causes of ALS. The registry also provides a way for the VA to inform veterans with ALS about research studies for which they may be eligible.

Who can join?

Any living veteran who has been diagnosed with ALS by a physician is eligible. Family members and friends of veterans with ALS who are unable to enroll themselves are encouraged to contact the registry to assist with enrollment.

Why join?

By joining the ALS Registry, you can:

• Provide valuable information to researchers trying to understand the causes and treatments for ALS.
• Be informed about ALS research studies for which you may be eligible.

What will happen when I join?

·        You will be asked to complete a brief

·        telephone interview about your ALS and your military history.

·        Every six months, you will be asked to complete a follow-up telephone interview to assess changes in your health and medical treatment.

·        The VA may contact you with information about ALS studies in which you may be eligible to participate. Participation in any study is VOLUNTARY.

To enroll or for more information, please call:

1-877-DIAL-ALS (1-877-342-5257)

or email us at: ALS@med.va.gov

The National Registry of Veterans with Amyotrophic Lateral Sclerosis (ALS)

is a National VA Initiative (DVA cooperative study #500A);

Principal Investigator: Eugene Z. Oddone, MD, MHSc

A program to accelerate drug discovery for Lou Gehrig’s Disease